hydrocephalus

It's been almost a year since Bella was diagnosed with hydrocephalus. It seems crazy to think that almost an entire year has passed since she had surgery. Since then, she's had her first Halloween, first Thanksgiving, first Christmas, first birthday, started crawling, talking, walking, etc. I look back then and remember feeling like my world was crumbling around me. She's doing so well now, it's hard to imagine sometimes that it even happened, that she actually has a shunt in her brain that's doing this amazing, important thing that her body can't do on its own.

I remember seeing her right after she came out of recovery. It was so sad. She was so lifeless and helpless and I couldn't even hold her. A friend of mine had come to visit and she told me about a friend of hers named Jennifer - who I had actually met on a few occasions - who had a daughter that was born with hydrocephalus and had already had several surgeries. It was good to know at that moment that someone else understood what I was going through.

The next day, I got a phone call in the hospital room. It was Jennifer's mom. She said she just wanted to tell me that they were praying for us, that they understood what we were going through, that she didn't want us to feel like we were alone in our experience and if we ever needed anything or just needed someone to talk to about it, all I had to do was call. I don't think she knows to this day how much that phone call meant to me. I don't think I knew, until this day, how much that phone call meant to me.

Saturday, Jennifer participated in a Hydrocephalus walk in Iroquois Park and her story was featured on Fox 41. The link is below if you'd like to read it.

Jennifer's Story

My sweet little Bella, post-surgery and now.